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Archive for June 10th, 2008

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Before Johnna was diagnosed with synovial sarcoma, I never even knew such a thing existed.  It’s a pretty rare cancer and sarcomas in general are under-researched, under-funded, and patients and doctors are fairly under-educated on the specifics. According to the National Cancer Institute, synovial sarcomas account for 500-1,000 of the 10,000 sarcoma cases diagnosed every year.  [...]

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In April, 2008 my identical twin sister was diagnosed with aggressive, stage III synovial sarcoma.  This is my thoughts and insights as she and my family struggle with the disease that hit us like a train and took us all by surprise.

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